Friday, April 30, 2010


This week we had the opportunity to meet with Courtney Eidel, Senior Human Resources Director of Community Options. Courtney is a seasoned human resources professional who has been a breath of fresh air to the organization.

Here is the Q and A with Courtney:


Q - In your new position as Senior Human Resource Director for Community Options, what attracted you to the position and had you worked for a nonprofit previously?


A- The mission of COI is what initially attracted me to the organization. Having a family member and Godson with autism, I have a personal interest in the services that COI offers. My previous experience in the non-profit sector was with the Musculoskeletal Transplant Foundation, which provides allograft tissue and devices to the surgical community.

Q - Community Options has over 2,000 employees. This is a large workforce. How have you positioned the Human Resources Department to effectively manage the workforce?

A- We have recently restructured the department to provide better consultative services to our management staff and employee population. The regions are divided by RVP and are assigned a specific Generalist and Coordinator to respond to topics such as policy inquiries, employee relations and leadership development. By having a specific point of contact, managers will receive more timely and consistent responses from a Generalist who understands their business needs. The benefits functions have also been restructured to handle the increase in our employee population.

Q - What are some of the things you are currently working on?

A- The most recent HR initiative was the implementation of a new performance management system. The purpose is to gain more consistency in evaluating and rewarding performance. Other initiatives include the roll out of a wellness program, the launch of formal safety meetings, hosting a job fair at Rider University and making updates to our policies and procedures manual. We are also streamlining our processes and HRIS system, Ceridian, to provide faster and more comprehensive services. We are making a lot of positive changes in the department and I am thrilled to be a part of it all.

Q - What advice can you give to executive and program management to boost and sustain workforce morale? What are some good strategies?

A- Everyone is motivated differently. Some employees are motivated by recognition, increased responsibility, autonomy and a sense of purpose. It is imperative for managers to learn what motivates each of their employees and respond accordingly. Managers should also proactively provide direction and feedback and whenever possible, link the employees’ contributions to the success of the organization. This creates an environment of accountability and ownership. I encourage the managers to reach out to their Generalist for guidance in this area as well.

Q - What are two of your short and long term goals for Community Options Human Resource Department?

A- Our short-term goals include expanding upon the metrics we established to analyze and respond to the needs of our workforce. This includes items such as employee sustainability and the ROI of our recruitment sources. Long term, in conjunction with the goals of the Executive Management team and we will focus on talent management.

Courtney indicated that she looks forward to working on these initiatives with management and the HR staff and couldn’t be happier with her decision to join Community Options.

Wednesday, April 28, 2010



Recently, Community Options and Disabilities at Work Radio teamed up to support each other through various efforts.

Disabilities At Work (DAW) is a national initiative aimed at raising awareness of the issues facing people with disabilities and rewarding businesses that support them. DAW launched an Internet radio talk show on April 14 on the VoiceAmerica Business Channel. The show airs every Wednesday at Noon (EST). DAW Internet Radio focuses on broad areas of interest to people with disabilities, their advocates and their employers.

President and CEO of Community Options, Robert Stack, will be featured on two segments of Disabilities at Work this summer. Disabilities at Work Radio is also a proud sponsor of Community Options 5th Annual Conference "Advocacy - Connect. Share. Live." The conference is taking place at the W Dallas September 27-30th, 2010 with Judy Woodruff as one of the keynote speakers.

"I am thrilled to have the opportunity to partner with Disabilities at Work Radio," says, Stack. "Having a national radio show entirely dedicated to the employment of people with disabilities in the competitive workforce along with best practices is a phenomenal resource for our country," he added.

People with disabilities, their families, service providers and other supporters comprise the largest minority group in the country and control more than $200 billion dollars in discretionary spending – an amount that exceeds that of the highly coveted teen market. DAW converts this latent consumer power into a focused ongoing campaign that rewards businesses that support people with disabilities.

DAW Radio spotlights businesses that support people with disabilities through philanthropy, or that go ‘beyond compliance’ in finding and hiring people with disabilities. The show features corporate VIPs, successful service providers, educators, people with disabilities who have interesting stories, authors, researchers, government officials, elected representatives, and celebrities who have reasons to be involved.

“We are pleased and excited to be able to raise awareness for the issues facing people with disabilities,” said Dana Egreczky, president of Disabilities At Work. “Producing the Internet Radio Show brings this important project to the next level.”

Friday, April 23, 2010


There are so many incredibly talented people working with Community Options across the United States, we felt it would be great for everyone to get to know them better through question and answer sessions that will be posted on our blog.

Our first Q and A is with Karen Hensley, Regional Vice President for Community Options in Tennessee, South Carolina and Kentucky.

Q: How long have you been working for Community Options?


A: I have been with Community Options for 9 years.

Q: What did you do prior to working with Community Options?


A: I was the COO for Easter Seals of Tennessee and have worked in the non-profit world with people with disabilities for 22 years (WOW!!!.....where has the time gone).

Q: What are the most challenging parts of your job?


A: The most challenging part of my job is balancing the ever changing funding sources in each state especially in these economic times.

Q: With budget cuts taking place all across the country, how do you see this effecting your operations in South Carolina, Kentucky and Tennessee?

A: All of our Executive Directors along with myself have become better forecasters and predictors of the changing economic environment. As always, we operate creatively and efficiently, and this has forced us to improve those skills even more. We are consolidating homes per the state's funding source revisions, thus downsizing staff where possible. Our Executive Directors are also working very closely with the funding sources regarding expansion through institutional referrals and community transitions.

Q: How do you balance work/life - what are some of your hobbies outside of work?


A: Yard work, softball and pool time along with a good book are all great equalizers!

Thanks, Karen for everything you do! Please stay tuned for other spotlights on the wonderful employees of Community Options!

Photo Caption - Karen, center, featured with administrative staff from the Cookeville Tennessee operation.

By Michelle Diament
Disability Scoop
April 12, 2010

An excerpt from Michelle Diament's piece on Disability Scoop, please click on Disability Scoop to read the article in its entirety.

The hit show “Glee” returns Tuesday for a nine-episode run on Fox this spring and so too does the show’s inclusion of characters with disabilities.

Last fall, actress Lauren Potter, 19, who has Down syndrome, debuted on the show as Becky Jackson, the school’s newest cheerleader, or Cheerio. Now, Potter is back for two more episodes — “The Power of Madonna,” airing April 20, and “Home,” airing April 27.

The experience mirrors real life for Potter in many ways. The bubbly teen tried out to be a cheerleader at her Riverside, Calif. high school, but didn’t make the squad. Then, after graduating last year, Potter beat out 13 other girls for the role on Glee. Nowadays, Potter splits her time between acting and attending a life skills program.

Continue reading this article by clicking here - Disability Scoop!

Thursday, April 22, 2010


The Affordable Care Act Gives Americans with Disabilities Greater Control Over Their Own Health Care span>

Greater Choices for Americans with Disabilities

Expands the Medicaid Program

• Expands the Medicaid program to more Americans, including people with disabilities.   


New Options for Long-Term Supports and Services


• Provides a new, voluntary, self-insured insurance program (CLASS Act) that helps families pay for the costs of long-term supports and services if a loved one develops a disability.

Creates new options for states to provide home and community based services in Medicaid, enabling more people with disabilities to access long-term services in the setting they choose.

Extends the Money Follows the Person program and makes improvements to the Medicaid Home- and Community-Based Services (HCBS) option.


Eliminates Insurance Company Discrimination

• This year, prohibits insurance companies from denying children coverage based on pre-existing conditions.  Going forward, the Act will prohibit insurance companies from denying coverage or charging more to any person based on their medical history, including genetic information.
• This year, provides access to affordable insurance for uninsured Americans with pre-existing conditions through a temporary, subsidized high-risk pool, which will help protect them from medical bankruptcy.  This high risk pool is a stop-gap measure that will serve as a bridge to a reformed health insurance marketplace. 


More Affordable Choices and Competition

• Creates state-based health insurance Exchanges to provide families with the same private insurance choices that the President and Members of Congress will have, including multi-state plans to foster competition and increase consumer choice. 


One-Stop Shopping

Provides standardized, easy-to-understand information through the Exchange on different health insurance plans so Americans can easily compare health plans to choose the quality, affordable option that is right for them.


Insurance Security

• Ensures that families always have guaranteed choices of quality, affordable health insurance whether they lose their job, switch jobs, move, or get sick, through creation of Exchanges.


Makes Health Care Accessible to Everyone

Provides access to health insurance through Exchanges to those without job-based coverage and provides premium tax credits to those who can’t afford coverage, significantly increasing access to a choice of health insurance plans for individuals with disabilities.  This will enable individuals to keep their jobs rather than giving up employment in order to receive Medicaid benefits. 


Lowering Costs by Rewarding Quality and Cutting Waste

Insurance Industry Reforms that Save Money


This year, eliminates all lifetime limits on how much insurance companies cover if beneficiaries get sick and bans insurance companies from dropping people from coverage when they get sick.  The Act also restricts the use of annual limits in all new plans and existing employer plans this year, until 2014 when all annual limits are prohibited.

Going forward, plans in the new Health Insurance Exchanges and all new plans will have a cap on what insurance companies can require beneficiaries to pay in out-of-pocket expenses, such as co-pays and deductibles. 

Supports States starting in plan year 2011 in requiring health insurance companies to submit justification for requested premium increases, and insurance companies with excessive or unjustified premium exchanges may not be able to participate in the new Exchanges.

Cracks down on excessive insurance overhead starting in 2011 by applying standards to how much insurance companies can spend on non-medical costs, such as bureaucracy, executive salaries, and marketing, and provides consumers a rebate if non-medical costs are too high.


Assuring Accessible, Quality, Affordable Health Care for People with Disabilities


Preventive Care for Better Health

This year, requires new plans to cover prevention and wellness benefits at no charge to American families by exempting these benefits from deductibles and other cost-sharing requirements.

Invests in prevention and public health to encourage innovations in health care that prevent illness and disease before they require more costly treatment.  People with disabilities are less likely to receive preventive care and are more likely to be diagnosed with screenable cancers at a later stage.

Improves access to medical diagnostic equipment so people with disabilities can receive routine preventive care.


Addresses Health Disparities


Moves toward eliminating disparities by improving data collection on health disparities for individuals with disabilities and improving training of health providers.


Improve Care for Chronic Disease

Invests in innovations such as medical homes and care coordination demonstrations in Medicare and Medicaid to prevent disabilities from occurring and progressing and to assist one in every 10 Americans who experience a major limitation in activity because of a chronic condition. 

Wednesday, April 21, 2010


Star Ledger
By Chris Megerian/Statehouse Bureau
April 18, 2010


Excerpt:

What Grimes didn’t write was that O’Leary was losing weight rapidly and living in a room that reeked of urine. The next month, a concerned relative was shocked when Grimes brought O’Leary to a nearby diner for a visit. O’Leary was dirty and thin, and her shoes were on the wrong feet, according to the family.

In fact, she was starving to death. By the time she was rushed to the hospital that September, she was severely underweight. She had bedsores and brittle nails, according to medical records, and her hair was falling out. She died in November 2008, weighing about 48 pounds at 28 years old.


Please read this article in its entirety "Caretakers at Bloomsbury facility for disabled adults accused of abuse, neglect after 2 residents die"

Monday, April 19, 2010


Written by:
Robert Stack
President and CEO
Community Options

Happy Birthday Justin or should I say Artyom now? You remember, the adopted boy who came from a Russian institution only to be returned because the family in Tennessee couldn’t handle him. Well, he just celebrated his 8th birthday in a Russian hospital.

The truth of the matter is that an 8 year-old boy going to an institution, or coming from one is not news. If he were placed in an institution in the Clover Bottom institution in Tennessee, or the Broome institution in New York or any of the seven institutions in New Jersey or the 13 facilities in Texas, no one would have blinked an eye. This is because we still keep over 50,000 people with disabilities locked away in horrific facilities throughout hundreds of institutions in 38 states.

This shameful relic of failed past federal and state public policy is our answer to American parents if they feel they can no longer care for their child with a disability. The practice became acceptable during the last part of the 19th century and throughout the 20th century and is still the last resort today.

Leaders, policy makers and advocates have gradually realized that this is wrong. Many states like Minnesota, most of the New England states and now even Michigan have either ruled this out as an option. (Michigan is closing their last facility this summer). In 1965 there were over 100,000 children and adults with autism, mental retardation, cerebral palsy and even epilepsy living in large, horrific congregate and very costly facilities. Today that number has been cut in half.

Most Americans were horrified at what happened to this 8-year-old boy. Honestly, the only reason it became news was that he had to go back to Russia. I spent a day at an institution in Russia for children and adults with developmental disabilities. It was indubitably the most daunting experience I had in Russia. The children and adults slept in a large building with nothing to do. The conditions were dank; the setting was so far away from the rest of the Russian community. There were accounts of abuse, neglect and unmentionable sights of positive treatment of the people with disabilities that lived there. However, other than a different language, it was literally no different than the exact same kind of treatment that is experienced daily by the thousands of children and adults with disabilities in the United States.

Once in a while there is a news story that erupts about the horrific conditions in a U.S. institution, then it goes away. Recently in Corpus Christi there was a brief story about staff that would provoke people with disabilities to beat each other. The staff would bet on who would win and one of the staff even used her cell phone to tape this fight club. There are the usual deaths without cause, the pregnancies of blind/deaf girls who can’t walk. I was in an institution with an elected official and witnessed a girl bound in rags by her hands and feet. She was also naked.

In most states, the average cost to keep a person in an institution is about $630 per day (around $230,000 per year). These institutions are financed through Medicaid.

Over my lifetime I have seen Presidents decide that something was fundamentally wrong with how children with disabilities are treated in our country. President Kennedy had a sister. He created the “President’s Committee on Mental Retardation” to heighten the awareness of people with disabilities. President Reagan knew that things should be solved on a local level, so in 1981 he signed the Omnibus Reconciliation Act to give more say to states on how to allocate resources to persons with disabilities resulting in 50,000 people being moved to small homes and foster care settings. President Bush signed the Americans with Disabilities Act to increase the abilities of persons with disabilities to live and work more in the community.

There has been significant litigation in Connecticut, New York, Pennsylvania, New Mexico and in Tennessee; there were three lawsuits. The process has been very slow and very costly. The process to close an institution through legal channels is more costly than making the decision to just shut one down. In Tennessee for example, the lawsuits for institutional closure has gone on for over a decade, costing hundreds of millions of dollars.

There are cottage industries of advocates that migrate from state to state based on the efficacy of a lawsuit vies a vie settlement. However, with the serious recession and the loss of revenue to states and the Governor of Tennessee showing marked leadership mandates the Nashville institution be closed before the end of the year. This decision was seemingly arrived at through financial considerations, which is that community living is far less than institutional care.

In many states, the reason that institutions have yet to be closed is lack of leadership and essentially resistance to change.

This resistance is based on job loss and fear of what might happen without an institution to fall back on. Most unions are opposed to institutional closure. They do not want their rank and file to lose their jobs.

The truth is that in states like Minnesota, other branches of state government do in fact hire state workers employed by these institutions. The unions still continue to resist and it seems to take site visits by the United States Department of Justice followed by lawsuits to expedite closure. A few years ago, the state of New Jersey was issued a 27-page letter from the Department of Justice citing hundreds of incidents of abuse and neglect at two of their seven institutions. Horrific accounts of beatings and neglect witnessed by government officials demanding reformation and closure were highlighted. New Jersey settled.

Many of these institutions are utilized for other things, such as prisons or other more relevant and revenue generating venues. For example, the Western Center institution in Pittsburgh was sold to a developer and turned into condos. De-institutionalization has and will continue to be the answer.

It is a fact that persons with disabilities flourish in the community. The majority of people with disabilities now live in small community settings. Many of them have jobs, earn wages and become viable members of their communities. Today, parents are given so many additional options to prevent unnecessary options such as institutions. However, because the economic scales rest in the service provision of institutions, they are told to wait. Today there are over 250,000 families who remain on waiting lists to have their child given community programs. They cannot just send their child to Russia. However, years and years of waiting exacerbate an already bad situation and they wind up looking to an institution as the only viable means of compensating for an already bad situation.

If the President and his Secretary of Health and Human Services created an incentive plan to place people from these horrific institutions; if the federal government pushed states through positive programs to place the remaining people to not have to celebrate their 8th or 48th for that matter birthday in an institution, it would save literally over one billion dollars per year.

People with disabilities would experience their constitutional rights for life and liberty. It is time for us to acknowledge the fact that the way we treated people with disabilities for the last 100 years didn’t work. We now know what does work. It is not sending them to Russia, or a domestic institution. It is giving them the supports they need in small community based homes locally where they can live and benefit from all this country has to offer.


Please watch the below video on institutional closure:


Thursday, April 15, 2010


This is a great article by Dakshana Bascaramurty of Globe and Mail Update. Parents and educators of kids with developmental disabilities offer high praise for the new Apple iPad. They say it can serve as an assisted communication device, can help kids focus on routine tasks, and is a great help at easing student anxiety.
One in every 94 children in New Jersey has been diagnosed with Autism. It's a disability with no known cause or cure. But there is hope. My9 News Takes On the problem which affects everyone. Please watch the below video:

Saturday, April 10, 2010

Opinion Editorial
By: Robert Stack
President and CEO of Community Options


Seventeen years ago I was an executive assistant and was told to take the then Junior Assemblyman, now a member of Congress, Rodney Frelinghuysen to the Vineland Developmental Center for a tour. His assistant shrieked in horror to see a naked woman (hand, feet and neck) bound to a bed in rags.

Naively I said, “This is your fault”. He said, “What do you mean?” I said, “The legislature never appropriates enough money to take care of these folks in a good environment and the staff don’t know what to do.” Subsequently some of the administrative staff was let go from this facility after an investigation.

That was the Vineland Developmental Center “East Campus”. It was not called that in the sixties or the early seventies. The Vineland Developmental Center use to be called “The Vineland Developmental Center for Feeble Minded Women of Child Bearing Age”. The campus in those days was not called East and West. They were called the “Main Campus” and “The Colony”. Not only were persons with disabilities segregated by sex in those days, but by race as well.

Since then I have devoted all my time advocating that New Jersey needs to move appropriate persons with disabilities into the community to enable institutional staff to deal with people that needed more intensive care. Governor Florio closed the Johnstone Training and Research Center. Governor Whitman closed the North Princeton Developmental Center.

New Jersey still remains the second largest institutionally populated state in the country, second only to Texas. There are 17 states without any developmental centers. Michigan will close their last one this summer. The reasons they are closing are because they are morally wrong and too costly.

The NJ Division of Developmental Disabilities supports over 25,000 people with a budget of $1.3 billion. More than a half a billion is allocated for the 2,800 people living in the 7 institutions. Governor Whitman told me that closing the institution with public perception for fear of change, job loss and not to mention the shear logistics was one of the most difficult things she had done in her career. No Governor, with the exception of Chris Christie had the fortitude or the vision to make such a difficult but morally correct decision to close the Vineland Developmental Center as he announced yesterday. Sure it will save money, but it will also help transfer some of the people out of facilities who should have left years ago. His decision portrays a man that says when you have lemons such as huge deficits, make lemonade.

Commissioner Velez should be commended on making this overdue recommendation to close the Vineland Developmental Center. The physical plant at the Vineland Developmental Center is in need of so much repair and the employees can be moved to other facilities to reduce overtime and tend to those who need services more. The existing buildings can be used for a detention facility or even a community college or sold to a developer. It is the right thing to do. It is the best thing to do.

This decision is the reflection of a man who is not afraid to stand up and do what is right. It will be a sacrifice. It will be difficult. However, it is a decision that should have been made a long time ago.


Photo Caption: Robert Stack working with employees at the Princeton Daily Plan It


Photo Credit: Kathryn Sampson

Michelle Diament of Disability Scoop recently wrote about how the federal government is cracking down on civil rights violations when it comes to students with disabilities and other minority groups.

Secretary of Education Arne Duncan said that the Office for Civil Rights has not been as vigilant as it should have been in combating gender and racial discrimination and protecting the rights of individuals with disabilities and that this was going to change.

Friday, April 9, 2010

Otter eliminates words like "retarded" from code

By SIMMI AUJLA
AP/Idaho Statesman

BOISE, Idaho — Gov. C.L. "Butch" Otter signed into law Tuesday a measure that nixes the words "retarded," "lunatic" and the like from Idaho code, saying they are just as hurtful to people with disabilities as racial slurs are to minorities.

The new law replaces outdated language in 73 different laws - including those addressing health and welfare, education and corrections - with more accepted phrases such as "intellectually disabled."

Disability rights advocates said the revisions send a message to regular Idahoans that their government doesn't tolerate disrespect, since words like retarded are used, especially among teenagers, to insult others or describe distaste. Officials in several other states, including Washington and Oregon, have enacted similar laws.

On Tuesday, Otter compared words like retarded to racial slurs Americans used during World War II to describe Japanese people.

"We refer to people as Asians now, as Japanese," he said. "During the Second World War, we always used the most derogatory terms that were possible at that point. It suggested the anger in our society at Pearl Harbor."

Some of the laws with questionable language have been on the books for decades, such as a section of a 1908 law defining people who can't sign a contract for themselves, calling them "idiots."

Others are much more recent, like a section that refers to students enrolled in special needs classes with the term "mental retardation." That law went into effect in 1990.

Bill sponsor Sen. Les Bock, D-Boise, said he didn't realize how pervasive the slang word retarded is until he mentioned the bill in a talk last year about his work as a state lawmaker to junior high students at a charter school in Garden City.

As he began to describe his plans to change code to treat people with disabilities more respectfully, the students interrupted him.

"Oh, you mean 'retard,' like 'you're retarded,'" they responded before giggling, he said. "It was pretty spontaneous. I was surprised."

The term mental retardation is still used by the American Psychiatric Association in its diagnostic manual, a guidebook used by lawyers and doctors to determine if a person is disabled. The group plans to cut the phrase in its next edition.

Disability rights advocates aren't sure how the medical diagnostic terms retarded and lunatic became pejorative in popular culture.

"We often take words and language and twist them to have a different meaning," said Marilyn Sword, executive director of the Idaho Council on Developmental Disabilities. "I think people say it without thinking and don't realize it has the impact that it does."

On Tuesday, Otter also signed a measure that gives grandparents more custodial rights over children whose parents have dropped out of the picture. Since the end of the 2010 legislative session, he has approved a budget for Idaho public schools that slashes total spending for the first time in Idaho history, as well as reduced funds for the state parks agency, which he wants to become less reliant on taxpayer money.


Photo Credit - Bing Images

Wednesday, April 7, 2010

The Wall Street Journal's Melinda Beck has put together this organized and credible piece on Adults being diagnosed with Attention-Deficit Disorder. Check out the checklist screening below.

The symptoms of adult attention-deficit hyperactivity disorder seem to describe half the people in New York City: restlessness, impatience, impulsivity, procrastination, chronic lateness, and difficulty getting organized, focusing and finishing tasks.

How do you know you have ADHD, which experts compare to having a mind like a pinball, with thoughts flitting in multiple directions. Maybe you're just overcaffeinated and overworked? And if you do have it, will there be a stigma? Should you try medication? Will it work?

Parents of children with suspected ADHD face a myriad of similar questions. But the concerns can be just as troubling for adults, whose ADHD often goes unrecognized.

An estimated 8% of U.S. children have ADHD, which is also known as ADD, for attention-deficit disorder, and some 50% of them outgrow it, according to government data. About 4.4% of U.S. adults—some 10 million people—also have ADHD and less than one-quarter of them are aware of it.

That's because while ADHD always starts in childhood, according to official diagnostic criteria, many adults with the disorder went unnoticed when they were young. And it's only been since the 1980s that therapists even recognized the disorder could persist in adults.

Even now, getting an accurate diagnosis is tricky. Some experts think that too many adults—and children—are being put on medications for ADHD, often by doctors with little experience with the disorder. Others think that many more people could benefit from ADHD drugs and behavioral therapy.

Complicating the picture further, ADHD frequently goes hand in hand with depression, anxiety and bipolar disorder, and it can be difficult to untangle which came first. "It's very common for someone to be treated for depression or anxiety for years, and have the therapist not notice the ADHD," says Mary Solanto, director of the AD/HD Center at the Mount Sinai Medical Center in New York City. But adults whose ADHD is left untreated face a high incidence of substance abuse, automobile accidents, difficultly staying employed and maintaining relationships.

That said, some adults with ADHD are highly intelligent, energetic, charismatic and creative, and are able to focus intently on a narrow range of topics that interest them. David Neeleman, the founder of JetBlue Airways, and Paul Orfalea, founder of Kinko's, have spoken out about how the disorder helped them come up with innovative ideas for their corporations, despite their having done poorly in school.

"It's amazing how successful some people are able to be despite these symptoms, and some people are totally paralyzed—there's a whole spectrum of outcomes," says Ivan K. Goldberg, a psychiatrist in New York City who co-developed a commonly used screening test.

Generally, ADHD can make life very difficult. It's thought to be an imbalance in neurotransmitters, the chemical messengers that relay signals in the brain, particularly in the frontal cortex that governs planning and impulse control. Children with the disorder, particularly boys, are likely to be hyperactive, with an intense need to move constantly, which can interfere with learning. (Girls tend to be talkative and dreamy, but they are often overlooked because they aren't as disruptive.)

Adults more typically have trouble with paying attention, focusing and prioritizing. Managing time and money are particularly difficult.

"What it really is is a disturbance of the executive functions of the brain -- it's the inability to plan things, to initiate them at the appropriate time, not to skip any of the steps and to terminate them at the appropriate time," says Dr. Goldberg. "An awful lot of these people are very bright but they can't keep it together. They keep screwing things up."

"It's extremely hard for me to sit my butt in a chair. I get fidgety. I want to get up," says Linda Hensens, 46, a medical transcriptionist in Clayton, N.C., who discovered she has ADHD when a bariatric surgeon asked about her working habits. "I'll think of the wash that needs to be done and clothes that need to be folded and dusting that needs to be done and, Oh my god, I promised my nephew I'd make a cheese cake, and I've got Easter dinner to plan. My mind is going like that all the time."

Some people with ADHD are able to compensate for their distractibility, at least for a while. Some excel in school early on but run into problems once they get to college or get a job where they have to stay organized on their own.

"I see adults with ADHD who are in medical and law school or running companies, and at some point, they hit a ceiling. Their coping mechanisms aren't effective anymore," says Peter Jaksa, a clinical psychologist who works with ADHD patients in Chicago.

Dr. Jaksa says he recognized the symptoms of ADHD in himself long after graduate school when he was working with underachieving kids. "Once you know what it is, things make sense that didn't make sense previously," he says, such as his pattern of writing every paper in college the night before it was due, with a six-pack of Dr. Pepper and a bottle of No-Doz.

"We see people from all of the professions who have managed to succeed despite the limitations, but they have often done it at significant cost," says Dr. Solanto. "They don't have time to enjoy life. They don't get their work done in the course of a day. They have to stay late after hours, or they are doing without sleep, frantically trying to meet deadlines. It ultimately takes a toll on their wellbeing and a toll on the people around them."

While that sounds like many people who are simply driven or trying to do too much in an uncertain economy, experts say it may be ADHD when it interferes with the basics of life. "The magic word is impairment," says Dr. Jaksa. "Everyone gets distracted. Who's not late occasionally? But if you are chronically late, you lose your job and maybe your friends as well."

"I was a textbook case," says Ali Bauman, a 38-year-old writer in Chicago. "I had a messy bedroom and a string of minor car accidents that I could never explain. I couldn't keep the house clean, pay bills, get things done on time. It wasn't that I didn't want to do it, I just wasn't capable of doing it."

As with other psychiatric conditions, there is no blood test or brain scan that can diagnose ADHD. Experts say people who suspect they have it should have a thorough evaluation, ideally with a psychologist or psychiatrist who specializes in the disorder, looking at how they functioned in early childhood, in school and social settings and personal relationships. A screening test can help determine if you should see a mental-health professional, but shouldn't be used for diagnosis.

Once ADHD is diagnosed, most experts recommend treatment with both medication and behavioral therapy.

As counterintuitive as it may seem to give stimulants to people who can't sit down, drugs such as Ritalin, Adderall, Concerta and Vyvanse increase neurotransmitters in parts of the brain that help people focus and control impulses. "They wake up the parts of the brain that are sluggish, so they regulate the brain at a more normal level," Dr. Jaksa says.

There are some concerns that stimulant medications can be abused by people who don't need them. Dr. Goldberg notes that drugs for ADHD can make anybody focus better. But for people with true ADHD, they bring significantly more mental clarity. "My brain felt like it was screwed on more tightly. Everything came into focus. I could be active and do things with my life," Ms. Bauman says.

There also have been concerns that such medications could make some people with ADHD lose their creative edge. But, says Dr. Jaksa, "In my experience, that only happens when the dosage is too high, or it's not the right medicine." He also recommends at least 30 minutes a day of vigorous exercise, which can also increase neurotransmitters.

While medication can help ADHD sufferers focus better, behavioral therapy can teach them what to focus on, how to schedule their lives and set priorities.

Dr. Solanto developed a 12-week program to help people with ADHD learn to manage time, break down daunting tasks into manageable steps and keep themselves organized. One mantra of the program is: "If it's not in the planner, it doesn't exist," says Dr. Solanto. In a study of 88 patients published last month in the American Journal of Psychiatry, they found that those who participated in the program improved significantly more than those who received more standard supportive therapy.

ADHD coaching services provide some of the same lessons, for anywhere from $60 to $300 an hour. "People contact me when they're sick of themselves. They keep repeating the same patterns and can't get a grip on how to change it," says Nancy Ratey, a Boston-based coach who has ADHD herself. She designs individual strategies to help clients meet their responsibilities, which could run the gamut from hiring an administrative assistant to programming their cellphones to ring every hour to make sure they are staying on schedule. "There's nothing worse than an ADHD boss," who keeps saying "this is urgent," "no, this is urgent," she says.

Many ADHD sufferers learn their own tricks to stay organized.

"I buy socks in only one color so I don't confuse them," says Ms. Bauman. "I use one purse a week and my keys stay in there." And because she gets overwhelmed wandering around the grocery store, Ms. Bauman says she's begun ordering groceries online to save time.

Besides learning such organizing skills, many people with ADHD say the biggest challenge is learning not to let the disorder erode their self-confidence, and not to blame themselves for shortcomings.

"There's a huge incidence of depression with ADHD because you are continually failing in the eyes of others, not reaching your potential. People recognize you are smart, and you can't find your niche," says Rob Cahill, 38, an ADHD sufferer who works in social service agency in New York.

Still, Mr. Cahill says that understanding his disorder has helped him empathize with the social-service clients he serves. "The ADHD is a gift in some ways, it's just sometimes hard to recognize."

Photo Credit - Bing Images

Tuesday, April 6, 2010
























Justice Department's civil rights chief says fewer people with mental disabilities should be 'warehoused' by state.
By
Corrie MacLaggan
AMERICAN-STATESMAN STAFF

The U.S. Department of Justice's civil rights chief said Friday that an agreement with Texas on fixing state institutions for people with mental disabilities "falls short" on moving people out of the facilities.

"There are just so many people who are being warehoused in these institutions, and I think that's a tragedy," Thomas Perez , assistant attorney general for civil rights , said in an interview in Austin. He was in town to speak at a National Conference of State Legislatures redistricting law seminar.

Last June, the Justice Department and Texas entered into an agreement to improve health care and speed up investigations of abuse and neglect at the 13 facilities now known as state supported living centers. It was the culmination of a federal investigation that began in 2005 at the Lubbock facility after reports of abuse and neglect and later expanded to the other institutions.

Perez, an appointee of President Barack Obama, took office in October — months after the Texas deal was signed. It's not clear whether his objections — which signal a departure from what the Obama administration said at the time the deal was announced — could affect Texas. He said he inherited the agreement and needs "to respect that on a certain level." But now, he said, he'd like to implement far more aggressive agreements with states.

"The paradigm prior to our arrival was: 'Let's just make sure that the facilities are safe,'" he said. "The new paradigm is: 'Question No. 1 — What is your plan for moving eligible people into communities? Step two ... What is your plan for ensuring that the facilities are safe?"

Texas' philosophy, one state official said, "may be a little different."

"In Texas, we support choice," said Stephanie Goodman, a spokeswoman for the Health and Human Services Commission , referring to the options of living in institutions or smaller group homes or enrolling in state programs that help people with disabilities live at home.

Still, the state is committed to ensuring that the population of the institutions continues to decline, said Cecilia Fedorov , a spokeswoman of the Department of Aging and Disability Services. About 4,300 now live in the institutions, down from 5,428 in 2000.

Texas allows people who want to leave state supported living centers to skip over a waiting list for home-based programs, and last year the Legislature expanded the number of spots in home-based programs available to living center residents.

"We need to be doing everything we can to make successful transitions for people who wish to move," Fedorov said.

Perez said that an ideal agreement would have specific numbers of people that the state should move out and timelines of when that should happen.

The Texas agreement requires the state to identify people who want to move out of the institutions, help them make that transition, and make sure their needs are met in their new setting, Fedorov said. But there are no specific numbers on how many people should move out.

Without those specifics, said state Rep. Elliott Naishtat , D-Austin, a member of the House Committee on Human Services, "what we're dealing with is wishful thinking at best."

At the time the agreement was signed, U.S. Attorney General Eric Holder praised it.

"The Justice Department is committed to protecting the fundamental rights of all our citizens," Holder said in a June 2009 press release. "This agreement reflects that principle by protecting the civil rights of some of Texas's most vulnerable residents."

In the 1990s, Texas closed two state institutions as part of a lawsuit settlement. Later, the state considered closing more, but after heated hearings, decided not to.

Susan Payne of College Station, whose sister, Diane Ward , lives at Denton State Supported Living Center, said she finds it "very offensive" that Perez would say people are being "warehoused."

"Family members of people who live at the state supported living centers are very, very aware of the options in the community, and the families have chosen this as the best setting," Payne said.

But Perez said that moving people out of institutions is long overdue.

"It's a heck of a lot easier to have everybody in one setting," he said. "But ease should never trump what is right, and what is constitutional."


Friday, April 2, 2010

From Executive Healthcare
By: Jodie Humphries

2 April 2010 will mark the third annual celebration of World Autism Awareness Day - a day to increase and develop world knowledge of autism, by bringing together autism organizations from around the world. The aim is to give a voice to the millions of individuals worldwide who are undiagnosed, misunderstood and looking for help.

In December of 2007, the United Nations passed a resolution declaring 2 April as World Autism Awareness Day. The resolution was introduced by Nassir Abdulaziz al -Nasser, Permanent Representative of Qatar to the United Nations. According to a press release by the Representative of Qatar, "member States should break the 'barrier of shame' of people suffering from autism and raise international awareness of the importance of early diagnosis and treatment of the brain disorder, which was estimated to affect 35 million people worldwide."

The focus of many of today's autism organizations is to help raise awareness of autism and the other pervasive developmental disorders.

There are several benefits to raising awareness about autism. The more people that know about autism, the more likely that research funds will be dedicated to understanding this developmental disorder. As more research is conducted, breakthroughs in autism treatment are more likely, suite101.com reports.

Autism reports

Raising autism awareness is an even more important task now that one in 110 children in the United States are on the autism spectrum. At no other point in recent history has the need for autism awareness been so important. ASDs are reported to occur in all racial, ethnic, and socioeconomic groups, yet are on average four to five times more likely to occur in boys than in girls.

Prior to the 2009 revision, the autism prevalence rate was at one in 150 children. This represents a significant jump in autism spectrum disorder diagnoses in the four years that passed between the 2002 and the 2006 study results. There are many ways to promote autism awareness with the first step being an accurate look at how autism affects children in the United States.

If four million children are born in the US every year, approximately 36,500 children will eventually be diagnosed with an ASD. Assuming the prevalence rate has been constant over the past two decades, we can estimate that about 730,000 individuals between the ages of 0 to 21 have an ASD, the Centers for Disease Control and Prevention states.

Around the world, people will be joining together to bring awareness to autism, a often undetected disorder.